Tuesday, June 21, 2011

Improving Slowly?

OK.  Last night was BG's first Rebif shot without a nurse present and he did a great job. He is using the Rebif II Autoinjector.  It did not hurt a bit.  He used a spot on his belly, noted it in the Rebif Journal, and went to sleep.  No obvious reactions at the site. 

Yesterday BG came out at dusk and walked unassisted around the yard with faithful dog!  That was huge.  The day before he showered, sat at the table and told a story sounding like his "old self," and then actually went out and got on his beloved lawn tractor (scaring the s**t out of me) and mowed for 20 minutes. (These days if he is anywhere but in bed or the bathroom I am shocked.) He was exhausted after that.  But it was wonderful.  Is it the effects of five days of 1000mg IVSolu-Medrol last week? Is it the Rebif? Is it just the natural course of this hellish episode? I don't know.  But I see a positive trend. 

One thing is certain.  This is slow and this is unpredictable from hour to hour and day to day. Maybe this is one of the lessons of this stupid disease.  One must be patient each moment and deal with what comes.  Each moment may present a disappointment or a gift or just more of the same.  We must cherish the gifts and breathe through the rest. To me it feels like an emotional  marathon.  I just can't maintain hyper stress for this long.  My body can't do it.  Our family can't do it.  We need to learn a new way to be which as strange as it sounds, requires us to relax emotionally around the MS. To find some peace with it, in spite of it. 

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